Tuesday, April 20, 2010

One Year Later

I have been thinking a lot about last year. Wow, what a time. Eli was born, had his first open heart surgery (the PA band), came home, and started the 6 weeks of recovery. When I look at the photos I get really, really weepy. I think I am feeling part heart break, part relief. Heart break because Eli was so small and so sick/in pain. Relief because we have made it this far, and this time last year I had no idea where we'd be at this point... 

Eli's birthday. 
He was brought to us after being seen in the NICU and before being transported to PICU

His bed.
Where he chilled, was held, and lived for 4 days before surgery.

Surgery day.
The surgeon (amazing!) coming to check on him.
Eli had a really, really hard time that night. He wasn't breathing well on his own so he couldn't have the full dose of pain medicine. Probably the worst night of my life.

In recovery! 
But still in lots of pain. We were fortunate enough to be able to leave 4 days after the surgery. So 8 days total at the hospital.

Hiccups.
Hiccups are the worst! The worst. Eli got them all the time. Just killed him. He got them a lot because he wasn't able to burp well, because his chest hurt. The only thing we could do was let him cry it out. This happened 5 or 6 times a day. 

Newborn nights.
Newborn nights are always hard. But his seemed harder. He liked the lights on, and did not want to be in the bassinet. Liked wide open spaces. Which fits to what he was used to in the hospital. 

Home recovery.
Recovery is typically 6 weeks long. In Eli's case he needed to come home with oxygen. Some need it up to 3 months afterward, but Eli only needed it for two weeks. 
This is where he chilled most of the time:

Oxygen gone, thankfully! 
Oxygen really does get in the way. 
And this is what is chest looked like 2 weeks after surgery:

I could go on and on. If you have any question feel free to email me at shandud@gmail.com
But for now, THE END.

Friday, April 9, 2010

Coloring

Eli has a lower blood oxygen saturation. A typical person has a blood saturation of 95 to 99 per cent, but Eli's blood saturation ranges between 78 and 84 per cent. This lower saturation is due to the mixing of the pink and blue blood because of the holes in his heart. Well this dubs him as "blue baby." The coloring of his skin isn't really blue, but off a bit. One can really tell in photographs.

Eli at 9 months old--Christmas '09
Eli on the left and his big brother Isaac on the right 

When Eli has his last surgery next year all the holes in his heart will be mended and his blood oxygen saturation will within normal range. No more "blue baby!"

Oh, this lower blood oxygen saturation makes Eli become tired and cranky very easily. I just got to remember in those moments of excessive whining, that, "he does not feel well, he does not feel well." Despite this he is one happy, crazy baby!